Good News!!

We got some good news at our appointment at U of M yesterday. Madelyn was diagnosed with PFAPA syndrome. PFAPA stands for Periodic Fever Adenitis Pharyngitis Apthous Ulcer. It is rare and as of right now there are no known causes or cures but it is not as serious or life threatening as what they previously thought she may have. Huge relief to us!!!! The specialist suggested we try a new medication that some children are having success with so we are starting her on the medication and hoping that it will work in keeping the fevers away. She will take it twice a day until she outgrows them. If it doesn't work then we will have to try the tonsillectomy but that means we will have to make her suffer thru an episode without ibuprofen to get the surgery so we want to try the medication first.
We are hugely relieved that she does not have the more serious disorder and thank you all for your thoughts and prayers!!!